Symptom Diary Card

Monday, October 20, 2014

Ovariancancer101.org, What A Wonderful Group

Now back to the core of the reason I started this blog, to raise awareness for ovarian cancer.  I want to introduce you to an organization started by a womderful woman who sadly lost her mom to late stage ovarian cancer.  How it was discovered will shock you.

Ovarian cancer is very tricky indeed.  Scary tricky.  Please visit this site to learn about her history and also about a beautiful treasure being promoted to raise funds.  I personally do not raise money, but periodically will write about others who do.

This Christmas tree comes with gifts!


Decorated-Christmas-Tree-And-All-The-Presents-Current-Value-$7-400-Drawing-To-Be-Held-Saturday-December-13th-@7-45pm-Tree-shown-is-our-2013-tree/p/29213750/category=0


I would love to have a beautifully decorated Teal Christmas tree in my apartment this year.  Time to buy a ticket.

Please visit  Ovarian Cancer 101.org for more information.

My next post will be about one of my favorite Saints,  Saint Peregrine.

Peace and Blessings,
Servivorgirl


Wednesday, October 15, 2014

Ebola Protocol Manual

chttp://www.voanews.com/content/ebola-september-3/2436904.html


If you are reading this post in real time you are probably aware that most hospitals in the United States are not prepared to properly treat patients with Ebola virus and congruently keep healthcare workers safe.

I cannot imagine why this is a problem.  We have had plenty of warning and there are links that provide detailed protocol on how to meticulously protect both the patient, other patients and anyone who comes into contact with the patient and patient fluids.

Here is a very detailed link that is designed for healthcare administrators to understand fully the scale of supplies, type of personal protective equipment and how to donn and doff the equipment.

Although this is written for field hospitals, our US based hospitals need to follow the core elements exaxtly as written.  It seems to me that training would be based on this kind of manual.  

That nurses and other employees at the hospital in Dallas did not have this information as part of a required training is criminal.

This link advises on two pairs of gloves!  Head to toe coverage and a separate changing area.  It is 209 pages.  There is no excuse for any hospital administrator's lack of preparedness.

We as individuals also need to take personal responsibility as well.  No matter what the situation, we must at all times be aware of personal risk and safety, either as a patient or caregiver.  We need to speak up right away and if nobody is listening, keep talking until someon does. It can literally be a matter of life or death.

People with cancer just need to be minful that it is beneficial to us to always keep protective gear on hand, especially when travelling.  Items such as masks and gloves are very important because we cannot predict when or where we will encounter a situation wherein someone else is sick.  Keep these supplies in a sealed bag, such as a ziplock bag, along with alcohol swabs and antibacterial gel.

CDC Manual     The Pdf link is at the bottom.

I hope someone finds this manual useful, as it is very thorough.

Peace and blessings,
Servivorgirl







Saturday, October 04, 2014

The Male Side Of Breast Cancer

The colors on the wheel go round and round......round and round......round and round.

Before I begin my posts for October I want to thank "Curves" of Crown Hill, in Seattle Washington.  The owner of this franchise graciously allowed me to bring in gynecological awareness handouts created by the Seattle Cancer Care Alliance.  "Curves" was hosting an open house and I had some table time with many members while distributing valuable information about gynecological cancer awareness, and my story with ovarian cancer.

We utilized the information found on the CDC "Inside Knowledge" Campaign and I am pleased to report that many women stated that this information was very helpful.  This way they not only learned about ovarian cancer, but all the major potential symptoms of gynecological cancers.

I was pleased to do this and hopefullly a few more women will be able to work more effectively with their physicians, should they have a concern in the future.  It also brought to the surface an opportunity for several women to talk about either their own or another's battle with some form of cancer.  

Thank you "Curves".  I also decided to become a member.  The program is not hard on my smaller joints (currently in a bit of trouble due to RA) and I really need the extra support.  I am finding this program comfortable, adaptable and most of all, FUN!  I will post progress, if it's good.  Ha!

Now to Men's Breast Health:

To start October off I thought it would be important to incorporate some information about hereditary breast cancer, in men.  My search landed me on a very thorough and educational article written in Medical News Today. 

Men are not likely to see themselves as potential breast cancer patients.  They can and do get breast cancer.  We can see that men all over the country do support this cause. Most men probably never considered that wearing pink can help them too.  Please share......

Quote from Medical News Today....

'It is vital for everyone to be breast aware'

"Women are encouraged to frequently check their breasts for any abnormalities, such as lumps, discharge from the nipple or changes in appearance or texture. And although many men may not be aware of it, they should do the same.
The most common signs of breast cancer in men are lumps or swelling in the breast or lymph node areas, dimpling or puckering of the skin, nipple retraction, nipple discharge and scaling or redness of the nipple or surrounding skin."


Peace and blessings,
Servivorgirl

Tuesday, September 30, 2014

Gynonc Surgeons To Rock Our World In D.C. Oct 1, 2014

I have to say that I was elated and shining from within after attending a recent showing of N.E.D. The Movie  This uplifting documentary speaks so intimately and powerfully about the wrath of ovarian cancer, as voiced by the surgeons in NED The Band.  N.E.D. stands for "no evidence of disease".  That is our goal!

I had no idea what to expect, but what I felt was a sense of pure dedication and purpose.  These highly skilled and honorable gynecological oncologists are also gifted with musicality.  They use their events and cd inserts as a vehicle to start the conversation about ovarian cancer.  Their music though is for the masses.  They are a rock band through and through!

Please link to their homepage for more about their music, their movie and their mission.
N.E.D. The Band

I want to thank Deborah Binder for hosting the event in beautiful Edmonds, WA to raise funds for

Seattle F.O.R.C.E. Facing Our Risk of Cancer Empowered  and National Hereditary Breast and Ovarian Cancer Week

Here is a note from Deborah.... "I am so glad that you were able to attend the NED movie and that you enjoyed it.

Most gyn-oncs know N.E.D. because they have played many times at the national oncology conferences around the USA.  I first heard them one year in D.C. at the National Ovarian Cancer Alliance meeting.  I know that my doc.--Dr. Goff and Dr. Muntz know them.

Last October I traveled to Portland to see the movie--a fundraiser for the Southern Washington and Oregon Ovarian Cancer Alliance.  After I saw it I knew that I wanted to do a similar event for OVCA Awareness month in 2014.  I rented the Edmonds Theater (it's where I live and I wanted to use a small hometown theatre not a megaplex) and I rented the movie from Spark Media".

Hugs,
Deborah

....................................................................
if you live in the D.C. area........

Congresswoman Debbie Wasserman Schultz is hosting a movie event in D.C. on October 1, 2014.  Please spread the word so that more money can be allocated to fight these cancers.

Capitol Hill Screening
First Street Southeast
Washington

Website  LINK
Description Representatives Debbie Wasserman Schultz & Renee Ellmers present a Congressional screening of No Evidence of Disease, featuring a live performance and panel discussion with members of N.E.D. This special event will take place on October 1st, 2014 at 6:15 PM.
Email info@sparkmedia.org


N.E.D. The Movie Screenings link


Peace and Blessings,

Servivorgirl

Thursday, September 25, 2014

Fibronectin And Our Cancer


Ovarian Cancer Dream Team Call for Ideas Now Open

su2c logo
The American Association for Cancer Research is now accepting submissions of ideas for the new Stand Up To Cancer Ovarian Cancer Translational Research Dream Team Grant that will offer up to $6 million in research funding, which includes $3 million provided by the leading funder, OCRF.
The Stand Up To Cancer-Ovarian Cancer Research Fund-Ovarian Cancer National Alliance-National Ovarian Cancer Coalition Translational Research Dream Team grant provides three years of funding for research projects that must include therapeutic interventions for ovarian cancer and deliver near-term patient benefit through investigation by a multidisciplinary, multi-institutional Dream Team of experts. Proposals for the grant must describe plans indicating how the group will use a transformative and synergistic approach, and how the work will be translated into the clinic. To maximize creativity, innovation, and collaboration, the projects should span multiple disciplines and use modern scientific tools to attack research questions in a coordinated effort.
Letters of Intent for SU2C-OCRF-OCNA-NOCC Translational Research Dream Team Grant are due by noon ET, Nov. 7, 2014, via proposalCENTRAL.
Read the full press here.
FIBRONECTIN AND CANCER
Please take a moment to link to the article below, posted by the Ovarian Cancer Research Fund.   As a non-scientist, I found it invaluable towards my understanding of how ovarian cancer cells proliferate, specifically in the omentum.  Learn about fibronectin and its role in the spreading of cancer.
Peace and blessings,
Servivorgirl